Thursday, August 1, 2013

Answer to Prayers!!!!

I have spent many hours in prayer over my health. The question hasn't ever been why me it has been help me find doctors who can help me. A couple months ago I asked my doctor for a referral to UCSF. I received a lot of push back. Some said NO, I was referred to another doctor to ask for the referral and one was like good luck it won't happen. 

It is very frustrating to be told well we have a couple patients with your cancer and we will help you the best we can. It is almost like a puzzle. I search for a piece here and there, show it to my doctors and then someone grabs another piece from left field. During my referral request I was referred to an oncologist within my HMO who is marvelous. One of the very few people who actually "get it". Things I have wanted other doctors to do he agrees with me and does it or he finds the best approach.

I have felt maybe the reason I have rare cancer is because God wants me to rely on him. I need to trust him, get a better relationship with him and realize there are some things in life I need help with. There are days I throw my hands up in the air and say God this is for you to handle. I just can't do this and I have to just trust him on my situation. I am a very stubborn person. I like to do things myself and do them right. It has been very hard to let go of things. Let go and Let God is an easy thing to say, but another thing to actually do. 

I was at the point I was ready to give up on my referral request. I had received so much push back that I was tired of fighting. Well the stubborn streak showed itself again at my appointment last week. I told my doctor please put in the referral. I agreed not to cause a big issue if it is denied, but I wanted to try. I have additional spots now that I feel are more serious, so I need someone with more experience to review my case. I thought I would hear from the board in 1-2 months. 

Wednesday night I came home late. The mail was still in the mail box, so I grabbed it. At first I was thinking why didn't Art take the mail inside, but I dismissed that thought when I saw an envelope from my HMO. It said OUTSIDE REFERRAL in the from portion. I looked at the envelope for a long minute thinking why should I open this because it is going to be denied which will result in me bawling. I even said to Art great I don't know if I can handle this tonight. 


Instead I read HMO has approved your request for medical care from the above provider. WHAT IN THE WORLD!!!! I started screaming it was approved, it was approved. I was jumping around and then I started crying. Art said you know what this means? I knew what he meant. Our prayers had been answered. I had my doctor appointment last Tuesday, July 23. The doctor submitted my referral that day. Within a week my referral was approved. Unheard of! Amazing! God is good! Prayer works!

I sat in our room & just cried. I cried because there was hope in sight. God listened to me. Every day I pray my friend TJ and Marissa cancer to be healed and my health. I pray for these things about the same exact place every single day as I make my short walk to work. Earlier this week I was frustrated and asked God are you listening to me? I keep asking for the same things every single day. When are you going to listen to me and answer my prayers? Well he answered 2 things this week. Marissa had scans done and it came back negative. This is HUGE. She has to continue to go through treatments, but God was listening to me. Then my referral came through. 



Tuesday, July 30, 2013

4th of July in Pictures




I guess my lap was rather comfy!





Our tradition is to spend the 4th of July at the inlaws. We bbq, shoot fireworks and rush home to get up for work the next day. lol I am happy next year we won't have to rush home for work the next day. The fireworks didn't seem to faze Kaleb. He just sat on our laps watching what was going on. 

Monday, July 29, 2013

Menu Monday

We have not been eating the healthiest around our house lately. We have been busy and with the stress of life it has been grab what we can find. My mother-in-law has been fabulous and sent home dinner twice over the past week. The one night she even sent home 2 quarts of ice cream. I was soooooo happy!

I decided it is back on the healthy train, which means it is time for me to start cooking again. 

Meatloaf, green beans and potatoes
Shrimp Tacos
Curry
Pork Chops & beet risotto
Pizza - cauliflower crust

What is on your menu this week?



Sunday, July 28, 2013

Rejoice in the Lord alway: and again I say, Rejoice.
(Philippians 4:4 KJV)

Saturday, July 27, 2013



Kaleb really likes to take naps on the couch. He was sitting on the couch, laid down and went to sleep. I went to look at him and he was snoring. 


Art took Kaleb outside. I found them sitting on the patio chair laughing away! It was so sweet to listen to them. Kaleb cracks up laughing when Art puts his goatee on his head. 

Friday, July 26, 2013

OOTD from Last Week


Sunday I had 2 outfits
Left:
Cardigan: Gap
Tshirt: J Crew
Skirt: Sears Outlet
Shoes: Marshalls

Right:
Chambray & Skirt: Old Navy
Sandals: Shoedazzle
Bubbles: Ebay


Sweatshirt: Gap
Skinnies: Old Navy
Shoes: Bass


Cardigan & Pants: Old Navy
Tshirt & Sandals: Target
Necklace: Banana Replublic


Sweater & Shirt: Gap
Pants: Old Navy
Shoes: Bass
Bubbles: Ebay


Top & Pants: Old Navy
Scarf: Amazon
Shoes: Bass

\

Cardigan & Sandals: Target
Tshirt: Kmart
Jeans: Old Navy

Thursday, July 25, 2013

Bart Happenings!



Random cassette laying on the bench at Bart. 

Wednesday, July 24, 2013

Sammy's Birthday!!!

Today our little fur baby Sammy was rescued 3 years ago. Each year we celebrate Sammy birthday on the day we adopted him. The first year I went ALL out here.  Sammy is probably 5 years old. We are guessing he was about 2 years old when we got him.  

Sammy has brought us so much joy over the past 3 years. I can't imagine life without him. We went to numerous places looking for a dog. When we found him I fell right in love. I was a little concerned through because they said he could nip people. We haven't had any issues with nipping. I am glad we didn't let the ASPCA scare us off. 



Halloween 2012
Sammy was not too thrilled with his bucking bronco outfit


Winter 2013 
Bandit Sammy


Spring 2013 
Begging for french fries


Spring 2013 
Hey!


Happy Birthday Little Sammy!!! 



Tuesday, July 23, 2013

Relay for Life!

In June Lacey lit a candle in my honor at a Relay for Life event. Very sweet of her! It made me cry to see all the pictures. 

It sounds funny to me when I refer to myself as a survivor. I guess I always thought of a survivor as someone who was on the brink of death and survived. I haven't been on the brink of death, gone through chemo or radiation. I just am doing what I have to do to make sure I have the best life. 

A few years back my mom organized a team for Relay for Life. I remember wondering what it was all about when she was doing it. I never got involved, but thought it was great she was helping others. My mom recently mailed me a Relay for Life tshirt she found from 2006. Lacey is now thinking about putting a team together for 2014. 




Monday, July 22, 2013

Homemade Baby Food

On Saturday Kaleb only had rice cereal to eat. I fed him a little and he was NOT a fan of the stuff. I decided to make him some organic pureed green beans. 

While I was cooking the green beans he sat in the high chair reading books and playing with his toys. He sat in his chair for about 30 minutes. I think this is the longest I have been able to keep him occupied for one period of time. 

When the green beans were done I gave him a bite. He acted like I put dirt in his mouth. lol He eats Gerber green beans all the time. I am not sure if he doesn't like the fact it was organic, the taste or the texture. I mixed a little rice cereal in with the green beans. It took him awhile to get them all ate. I put the extras in the freezer for his next visit. 





I made organic green beans by boiling the green beans, let them cool and then pureed them in the food processor.  I had a Gerber baby food container that I had saved, so I stuck them in there.  

Sunday, July 21, 2013

Rejoice in the Lord alway: and again I say, Rejoice. (Philippians 4:4 KJV)

Saturday, July 20, 2013

Crack!


I found a new crack it is called Late Night Snack by Ben & Jerry's. Holyleecow! This stuff is freakin amazing! I have NO plans to share my pint of ice cream with anyone. Please run to the nearest store and get a pint. You will thank me after you finish your 7th pint in a week. =)




Friday, July 19, 2013

Hurry up & wait!

Tuesday night became my new reality. I haven't admitted to myself that I REALLY have MTC. Deep down the reality of it hasn't sunk in except when I had certain conversations with my doctor. I believed  rhere was going to be a miracle and all the spots would be gone. In Febuary when I had my ct scan they found 7 spots on my lungs. Another person read the scan and said the last person had over read the scans. The spots could be blood vessels and that's what I believed for 5.5 months.

My hopes were up and I said lots of prayers this scan would be completely clear. I pushed the doctors to scan my body this round. We needed a baseline and I also didn't want anything missed. Turns out my gut was telling me to be proactive for a reason. 

I received a confirmation there are definately 7 spots on my lung and 1 spot on my liver. Other tissue they need to monitor too. The good news is my thyroid tissue is completely gone and no lymph nods in my neck. 

Constantly there are new plans. The newest plan is to have additional scans in 3 months. If anything grows or changes then I will have biopsies. Right now the spots are all so small it would almost be impossible to do a biopsy. 

I spent Tuesday night buried in bed, Wednesday was a haze and Thursday was back to normal. The truth is I have a rare cancer that grows very slowly. 

I feel lucky that I've found an oncologist that gets it. My conversations with him are very real & raw about an ugly disease. I have researched, harassed,  pushed and annoyed my doctors to make sure everyone is listening to me. I feel I have a good team assembled. Now my team has to stay up to par or I will start voting people right off lol. 




Thursday, July 18, 2013

6 months ago

Six months ago today Art and I woke up before the chickens to head to the hospital. I was more nervous for Art and my family then for me. I knew I would be fine but the next 10 hours would drag on for my family. 


Here I am at 4am getting ready to leave for the hospital. 

I didn't realize how much my life was about to change. Things I had never had to think about would now become a burden. I remember walking into the hospital almost care free. I thought once recovery was over and after the radio active iodine I wouldn't have anymore cancer thoughts. 

 Updating my journal

The past 6 months I've learned more about Medullary Thyroid Cancer, ct scans, blood levels, spots on my insides and other various cancer terms than I thought I would ever have to know. I also have learned how I need to handle getting rough news. It's ok to cry, scream and get angry, BUT those things need to get out and then move on. I have to take everything in before I can share it with my family. Once I absorb it all then I can remind everyone of positive parts. 

There are lots of people who live years with Medullary Thyroid Cancer. The majority of the doctors will tell you something else will kill you before MTC. It's rare that MTC will be the thing to take you down as long as you are monitoring your health. This is why I need to understand MTC the best I can because I'm my best advocate. 

I walked into the hospital on January 18 a cancer patient and out a survivor! The 6 month mark is very sweet!!! 

Wednesday, July 17, 2013

Stable

The meaning of words take on a whole new meaning with cancer. The word stable to me use to mean where Jesus was born or place to keep horses. Now the word is very comforting to hear when I get reports from the doctor. 

As I was writing this post I found such comfort in the fact Jesus was born in a stable. He is always there for us and brings us comfort when we need it. He was born in a stable not the Ritz Carlton. Now He is living in the best place Heaven. He came to us in the lowest place but waits for us in the highest place. 

I've had to learn to really trust God through my cancer trial. This trial isn't over. It will be a life long trial. I can get through it though even when the reports come back unstable because I have put my trust in the stable one! 

Wordless Wednesday


Sunday, July 14, 2013

Happy Sunday!




I can do all things through Christ which strengtheneth me.

Philippians 4:13





Saturday, July 13, 2013

2018 Goals

Here are my goals for 2018!

  • celebrate 10 years of marriage
  • celebrate 5 years of cancer free
  • celebrate Art turning 50
  • celebrating Amber & Marcus 5th wedding anniversary
  • all with our twin boys age 2-4 & a 5yr old Kaleb





Thursday, July 11, 2013

Bart Happenings

Just another day on Bart! I am soooo happy Bart is back up and running! I really hope Bart gets a contract in place within the next 30 days, so we don't have to suffer through another strike. 





I really don't know what is wrong with people to think it is safe to be riding a bike through the Bart station. Oblivious!